Last Updated: June 15, 2022
The Epilepsy Foundation wants to protect the privacy of visitors to our website. Information that users voluntarily share with us will be used to improve the quality of our services and promote public understanding and education about the impact of epilepsy on people's lives.
The Foundation has adopted the following Privacy Policy governing its website. This Privacy Policy applies to Personal Information collected or processed through this website and any other website operated by the Epilepsy Foundation, Learning Management System (Epilepsy Learning Portal), application, or social media page that links to this Privacy Policy (collectively, the "Website").
The Privacy Policy is continually reviewed, and we welcome your comments, which you may send to [email protected]. Users who have provided us with contact information will be informed of changes to our Privacy Policy.
"Personal Information" is information that identifies or relates to a particular individual. Examples of Personal Information include, but are not limited to:
Name
Email address
Telephone number
Mailing address
Online identifiers
We use Personal Information for the following purposes:
Providing you with our Website.
Analyzing, administering, and improving the Website and our services to users.
Enabling secure use of the Website.
Sending information and promotional materials by mail or email.
For users of our Epilepsy Learning Portal, this includes emails about our Website and related courses, your registration, course content, course progress, and other updates.
We may also send you email updates about the work of the Epilepsy Foundation. You can visit the portal at learn.epilepsy.com.
Protecting our rights or property.
Complying with legal obligations.
Other purposes related to the reasons you provide Personal Information, including when you consent to research and to contributing to general knowledge about epilepsy education and treatment services.
The Epilepsy Foundation respects the personal privacy of visitors to our website. We believe that keeping your information private and in a secure environment is very important.
When you browse the informational portion of our website, you do so anonymously. Personal Information is not collected unless you voluntarily provide it, as described below.
To participate in our Community, you must provide an email address or username and password. (Please note that this is not a closed community, and posts may be found through search engines outside the Website.)
We will not share your name, address, telephone number, or email address with third parties without your consent. We do not sell or rent your Personal Information. We do not provide any mechanism for an advertiser to contact you unless you register directly with an advertiser or third-party provider.
To improve the performance and design of the Epilepsy Foundation website, epilepsy.com, applications, and other digital platforms, and to provide better services, we track anonymous, aggregated usage information through log-file analysis.
The information collected includes basic statistical data, such as channels and sections viewed, access times and duration, search phrases used to reach the Foundation's website, browser type, and anonymized user data.
This information does not personally identify you in any way, and we cannot contact you through these data.
We use this aggregated and anonymized information to determine which sections of our website are most popular, for general promotional purposes, and to make decisions about the future strategy and direction of the Website.
Aggregated and/or anonymized information may also be shared with third parties to promote the Epilepsy Foundation's services and Website or to increase general knowledge about the public's need for epilepsy education and treatment services.
You voluntarily provide Personal Information when you choose to become a Website member, make a donation, join our Speak Up Speak Out grassroots network or newsroom, join our Community, subscribe to one of our electronic newsletters, use My Seizure Diary, participate in a research campaign, or purchase a product from our catalog or online store.
The information we collect through these transactions includes your name, address, telephone number, email address, seizure information, and, when you make a financial transaction, your credit card number.
This allows the Foundation to send messages and share information with you that we believe may be useful.
We study the demographics, interests, records, and behavior of our users based on this voluntarily provided information for various reasons, including gaining a better understanding of the needs of people with epilepsy, conducting internal research, and understanding how to improve our services.
User records are maintained in the strictest confidence.
Sometimes, we select and offer portions of our mailing list to carefully selected organizations that we believe may be of interest to you.
We may also ask for your consent to participate in external research related to your records.
If you do not wish to receive this information or would like your name removed from future communications, please notify us by emailing [email protected].
When you voluntarily join www.epilepsy.com, make a donation, or purchase an item from the Foundation, a cookie is placed on your computer's hard drive.
A cookie is a small amount of data stored as a text file. The data contain a unique identification number assigned by our system that recognizes your browser when it accesses our computer but does not recognize you as an individual.
These cookies remain on your system and are automatically retrieved when you return to our website.
We use cookies to remember who you are so that we can send you the information you requested and provide a more personalized service.
Cookies also allow us to automatically log you into certain sections of our website without requiring you to re-enter your username information on subsequent visits.
You may configure your computer's internet settings to receive an alert whenever a cookie is stored on your computer, or you may choose to prohibit cookies entirely.
You may also delete cookies that have already been stored on your hard drive.
If you prohibit cookies, please understand that you will need to re-enter your email address and other information each time you visit a portion of our website that requires identifying information.
If you need to change your Personal Information, you may do so at any time by returning to the portion of www.epilepsy.com where you registered or purchased items and entering the corrected information.
If you wish to change information in your My Seizure Diary, go to the account settings in your diary account.
If you wish to unsubscribe from the diary mailing list, contact [email protected].
If you no longer wish to receive newsletters, community forum subscriptions, marketing, or other information from the Foundation sent to your email address, you may unsubscribe by updating your profile at www.epilepsy.com.
If you are a Foundation member and wish to update your records, contact the Foundation by telephone at 1-800-332-1000 or by mail:
Epilepsy Foundation
ATTN: Epilepsy.com
3540 Crain Highway
Suite 675
Bowie, MD 20716
If you have shared your credit card number with us to purchase an item from our online store or make a donation to the Epilepsy Foundation, your credit card number is stored on a secure server and protected by firewalls.
The Epilepsy Foundation uses computer encryption technology to protect your information, and this information is kept confidential.
The Foundation sometimes contracts with third-party vendors and business partners to provide customer services and website hosting services.
When we do so, we enter into confidentiality and nondisclosure agreements with all vendors stating that they will keep information received through our website confidential and will not sell or share user information with third parties or use the information for personal purposes.
All Epilepsy Foundation employees are accountable for our privacy principles, and each employee is personally responsible for maintaining customer trust in the organization.
Despite these efforts to store Personal Information in a secure operating environment, we cannot guarantee the security of Personal Information during transmission or storage on our systems.
Furthermore, although we attempt to ensure the integrity and security of Personal Information, we cannot guarantee that our security measures will prevent third parties, such as hackers, from illegally accessing Personal Information.
We make no representation or warranty that Personal Information about you will be protected against loss, misuse, or alteration by third parties.
More information about the privacy policy relating to purchases from our online store can be found on our online store's website.
More information about the privacy policy relating to our Communities can be found at www.epilepsy.com.
The Foundation may disclose information to law enforcement and other governmental or judicial authorities in the rare event that we are requested to do so or if there is reason to believe disclosure is necessary to identify, contact, or take legal action against someone who may be causing harm or interference, whether intentionally or unintentionally, with the rights or property of the Epilepsy Foundation, other Website users, or anyone else who may be harmed by such activities.
The Foundation is concerned about the safety of minors who use the internet. We want you and your family to feel safe when visiting our website.
Children under 13: Please do not send us any information about yourself or your family if you are under 13 years old, including information such as your name, address, or email address, unless you have asked your parents for permission to do so.
The Foundation will not knowingly request personally identifiable information from children under 18 without parental consent.
If we learn that we have Personal Information from a child under 18, we will delete that information from our database as soon as possible.
Community forums and chat rooms are intended for individuals over 13 years of age.
The Epilepsy Foundation provides hyperlinks to numerous websites that we believe are of interest to people with epilepsy.
We do not control the privacy policies of business partners, advertisers, sponsors, or other websites to which we may provide hyperlinks, and the privacy policies of these third parties may differ from ours.
When you follow a hyperlink to the website of one of our business partners, advertisers, sponsors, or other websites, you are subject to their privacy policies rather than those of the Foundation.
The Epilepsy Foundation is not responsible for these provisions and expressly disclaims all liability relating to the privacy policies or practices of these other websites.
If you have questions or a complaint about the Epilepsy Foundation's Privacy Policy and practices, please contact the Foundation by email at [email protected], by telephone at 1-800-332-1000, or by mail.
Epilepsy Foundation
ATTN: Epilepsy.com
3540 Crain Highway, Suite 675
Bowie, MD 20716
Release of Learning Records
Learner Requests:
The Epilepsy Foundation ensures the confidentiality and security of all training records.
The availability of course and training records is necessary to ensure that learners have access to their professional development credits and can report their activities to relevant stakeholders, such as their schools, districts, or state education agencies.
The Director of Training and Education, Evaluation Manager, and Administrative Staff will ensure learner privacy and that records are shared only with authorized entities.
Student records will be maintained for a minimum of seven (7) years in compliance with the Epilepsy Foundation's record-retention requirements.
If a user has difficulty accessing information, they may contact [email protected] or call 866-748-8008 for assistance.
Third-Party Requests:
The Epilepsy Foundation receives funding from the Centers for Disease Control and Prevention (CDC).
The Epilepsy Foundation and CDC want to ensure that we reach all populations with seizure education.
Following CDC requirements, certain personal demographic information is collected, including date of birth, income, race/ethnicity, gender, occupation, and workplace information.
This demographic information is reported to the CDC in aggregate.
The information is not linked to individual identifiers, such as name, address, email address, or school information.
If participants do not wish to share this information, they should select the "Prefer not to answer" option.
The Epilepsy Foundation will provide reports to the local Epilepsy Foundation office that include the training date and participant information, such as name, address, email address, and workplace information.
Only contact information is shared; demographic information is not shared with local Epilepsy Foundation offices.
For states requiring mandatory epilepsy and seizure first-aid training, the Epilepsy Foundation may be required to report to the state education agency.
Information such as the training date and the participant's name, address, email address, or workplace information may be shared.
By using the Epilepsy Foundation's My Seizure Diary feature, you agree to the following terms and conditions:
1. If you create a Personal Diary, you are the only Website user who can view and edit your information unless you choose to share it with other users. If you choose to share your information with others, including caregivers, family members, or physicians, you can view a list of who has access to your information.
2. Granting others access to your Personal Diary may result in third parties misusing your information, and you do so at your own risk.
3. At any time, you may revoke someone's ability to access your Personal Diary. That person will no longer be able to read your health-related information, but they may already have viewed or retained a copy of the information.
4. The Epilepsy Foundation, owner of Epilepsy.com, may use and disclose health-related information collected from your Personal Diary as described in the Privacy Policy.
5. You are responsible for taking all reasonable steps to ensure that unauthorized individuals do not have access to your Epilepsy Foundation passwords or accounts and for choosing a username and password on Epilepsy.com that do not compromise security on any other website.
6. To obtain technical assistance with your Personal Diary, you may need to provide your username and password to the Website. You should not enter information in the Diary that personally identifies you.
7. You will not receive any payment or other compensation for the use of information entered into the Diary.
8. The Diary does not provide diagnoses, treatment, or other medical advice. You should seek such advice from your physicians. If you have a medical emergency, DO NOT use the Diary to communicate with your physician or another healthcare provider.
9. If you have further questions about your privacy in the Epilepsy Foundation's My Seizure Diary, please contact the Foundation at [email protected].
If you have further questions about your privacy on the Epilepsy Foundation website, or if you believe the Foundation may have violated your privacy, please contact the Foundation at [email protected].
Copyright © 1996–2020 Epilepsy Foundation of America, Inc., Bowie, MD. All rights reserved.
The information available on epilepsy.com is the property of the Epilepsy Foundation and is protected by copyright and other intellectual property laws.
All registered trademarks of the Epilepsy Foundation, including the names "Epilepsy Foundation" and "Epilepsy Therapy Project" and their respective logos, may not be used by anyone for any purpose without the express written consent of the Epilepsy Foundation.
September 15, 2023