This on-demand course is designed to increase the knowledge, skills, and confidence of healthcare providers in effectively diagnosing and managing rare and genetic epilepsies, including developmental and epileptic encephalopathies (DEEs).
Through six concise presentations led by national thought leaders in the field, participants will explore best practices for identifying, treating, and supporting individuals with rare epilepsies and their complex comorbidities. Topics include:
The recorded presentations were created as part of the Project ECHO. Inspired by the way clinicians learn from medical rounds during residencies, the ECHO Model® has evolved into a learning framework that applies across disciplines for sustainable and profound change. Project ECHO is housed at the University of New Mexico.
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Session 1 Jan 22
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Identify, Treat, & Manage Rare & Genetic Epilepsies |
Co-Chairs: Scott Demarest, MD, MSCS (Colorado Children’s) Senyene Hunter, MD, PhD (Univ North Carolina) |
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Session 2 Feb 5 |
Genetic Testing: Which Test When? |
Beth Sheidley, MS, CGC (Boston Children’s) John Schreiber, MD (Children’s National) |
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Session 3 Feb 19 |
Genetic Testing: Interpretation & Counseling plus Treatment & Management |
Heather Mefford, MD, PhD (St. Jude) Emily Bonkowski, ScM, CGC (St. Jude)
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Session 4 Mar 5 |
Identify and Collaboratively Manage Non-Seizure Comorbidities for Rare & Genetic Epilepsies |
Scott Perry, MD (Cook Children’s) Kourtney Santucci, MD, FAAP (Colorado Children’s) |
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Session 5 Mar 19 |
Best education & communication practices for Rare & Genetic Epilepsies regarding SUDEP/Mortality, rescue meds, seizure safety, Seizure First Aid, Seizure Action Plans |
Christal Delegrammatikas, PhD (Malan Syndrome) Laura Kirkpatrick, MD (Univ Pittsburgh) |
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Session 6 Apr 2 |
Transitions from Peds to Adult for Rare & Genetic Epilepsies |
Jaime Dawn E. Twanow, MD (Nationwide Children’s) Elizabeth Felton, MD, PhD (Univ Wisconsin) |
The target audience is healthcare providers, including Neurologists (pediatric and adult), epileptologists, genetic counselors, RNs/NPS, trainees, pediatricians, specialists, and other health professionals. The content will be available to anyone who would like to watch it, which may include Patient Advocacy Group organization leaders and patients and caregivers.
No, Continuing Education Units (CEUs) are not offered for this course. However, a certificate of completion is provided. Depending on your accreditation agency’s requirements, you may be able to use this certificate to apply for your own continuing education credit.
The Epilepsy Foundation is solely responsible for its content.
Instructors must divulge at the beginning of the course any vested interest in any product, instrument, device or materials that may be used in the learning event.
The Epilepsy Foundation is committed to providing equal opportunities for all persons and does not discriminate or retaliate on the basis of race, color, national origin, religion, sex, sexual orientation, gender identity, marital status, age, disability, citizenship or legal immigration status, veteran status, or any other status protected by federal, state and local laws (“protected status”). The following individuals have been designated to receive inquiries or complaints regarding the Foundation’s anti-discrimination policy:
Employees contact:
Department Name: Human Resources
e-mail: [email protected]
Students, prospective students and third parties contact:
Department Name: Training
e-mail: [email protected]
You can find additional FAQ's about this learning portal on the Frequently Asked Questions page
